The Effect of Recreational Activities and Education on the Quality of Life of Parents of Individuals with Autism
Abstract
This study investigates the impact of recreational activities on the quality of life of parents raising children diagnosed with Autism Spectrum Disorder (ASD). Employing a quantitative correlational design, the research sample consists of 154 parents (133 mothers and 21 fathers) affiliated with the Akdeniz Autism Sports Club Association. Data were collected using a demographic information form and the Quality of Life in Autism – Parent Version Scale (QoLA-PV), adapted into Turkish by Özgür, Eser, and Aksu (2017). Statistical analyses included descriptive statistics, independent samples t-tests, ANOVA, Pearson correlation, and simple linear regression. The findings revealed that parental quality of life was at a moderate level and significantly influenced by family and social pressures, as well as by the perceived behavioral challenges of the child with ASD. A negative, albeit small, but statistically significant correlation was found between the severity of ASD-related difficulties and parental quality of life (r = –.25, p < .01). Furthermore, parents who reported that their child’s ASD condition restricted participation in recreational activities showed lower well-being and higher perceived difficulty levels. The study highlights the critical role of structured recreational engagement in improving the psychosocial resilience of parents and underscores the need for community awareness, inclusive recreational programs, and supportive policies. These findings contribute to the limited literature on autism and recreation by emphasizing the multidimensional benefits of leisure activities for families affected by ASD.
Keywords: Autism Spectrum Disorder, Leisure Participation, Recreation, Parental Well-being, Quality of Life.
Full Text:
PDFReferences
Akkök, F. (2005). Yaşamın diğer bir penceresi: Otistik özelliklere sahip çocuk babaları ve duygular. Özgür Yayıncılık.
Alıcı, Y., Halil, S., & Aydın, İ. (2020). Leisure and physical activity with the perspective of the parent who has child wıth aitism. Spormetre Journal of Physical Education and Sport Sciences, 18(1), 144–155. https://doi.org/10.33689/spormetre.589006
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders: DSM-5 tanı ölçütleri başvuru el kitabı (E. Köroğlu, Çev.). Boylam Psikiyatri Enstitüsü Hekimler Yayın Birliği.
Ardıç, A., & Çaykartar, A. (Eds.). (2012). Özel gereksinimli çocuk ve aile. Vize Yayıncılık.
Aydın, İ., & Sarol, H. (2014). Examination of constraints on physical activity programs participation to individuals with autism. International Journal of Science Culture and Sport, 1, 870–880. https://doi.org/10.14486/IJSCS162
Balkanlı, N. (2008). To study the relation between the quality of life, satisfaction with life, and hopelessness level for mothers having and not having an autistic child. Master’s thesis, Maltepe University, Institute of Social Sciences.
Berger, E. H. (2008). Parents as partners in education: Families and schools working together (7th ed.). Pearson Prentice Hall.
Cassidy, A., McConkey, R., Kennedy, M., & Slevin, E. (2008). Preschoolers with autism spectrum disorders: The impact on families and the supports available to them. Early Child Development and Care, 178(2), 115–128.
Creswell, J. W. (2012). Educational research: Planning, conducting, and evaluating quantitative and qualitative research (4th ed.). Pearson Education.
Çam, O., & Özkan, Ö. (2009). Otistik çocuk sahibi ailelerin yaşam kalitelerinin incelenmesi. Özveri Dergisi, 6(2), 1425–1438.
D’Agata, E., Sanders, M., & Carter, M. (2023). Leisure, employment, community participation, and quality of life in caregivers of autistic children. Journal of Autism and Developmental Disorders, 53(4), 1234–1245.
Dattilo, J., Hoge, G., & Malley, S. M. (1996). Interviewing people with mental retardation: Validity and reliability strategies. Therapeutic Recreation Journal, 30, 163–178.
Driver, B., Brown, P., & Peterson, G. L. (1991). Benefits of leisure. Venture.
Eapen, V., Crncec, R., Walter, A., & Tay, K. P. (2014). Conceptualisation and development of a quality of life measure for parents of children with autism spectrum disorder. Autism Research and Treatment, 2014, Article ID 964614. https://doi.org./10.1155/2014/964614
Eccles, J. S. (2005). Studying the development of learning and task motivation. Learning and Instruction, 15(2), 161–171.
Garcia-Villamisar, D., & Dattilo, J. (2010). Effects of a leisure program on quality of life and stress of individuals with ASD. Journal of Intellectual Disability Research, 54(7), 611–619.
Genç, A. (2019). The effects of recreational and sportive activities on the quality of life of mothers with autistic children. International Education Studies, 12(7), 32–38.
George, D., & Mallery, M. (2010). SPSS for Windows step by step: A simple guide and reference, 17.0 update (10th ed.). Pearson.
Güleç, C., & Köroğlu, E. (1998). Psikiyatri temel kitabı. Hekimler Yayın Birliği.
Heah, T., Case, T., McGuire, B., & Law, M. (2007). Successful participation: The lived experience among children with disabilities. Canadian Journal of Occupational Therapy, 74(1), 38–47.
Hoffman, L., Marquis, J., Poston, D., Summers, J. A., & Turnbull, A. (2006). Assessing family outcomes: Psychometric evaluation of the Beach Center Family Quality of Life Scale. Journal of Marriage and Family, 68(4), 1069–1083.
Huang, J., Zhu, T., Qu, Y., & Mu, D. (2023). The global prevalence of autism spectrum disorder: A three-level meta-analysis. Autism Research, 16(1), 8–23.
Iso-Ahola, S. E. (1980). The social psychology of leisure and recreation. Wm. C. Brown Company Publishers.
Karabilgin, Ö. S. (2001). Balatçık Sağlık Ocağı Bölgesinde 15-49 yaş kadınlarda depresyon prevalansı ve WHOQOL-BREF ölçeği ile yaşam kalitesinin değerlendirilmesi. Doctoral dissertation, Ege University, Institute of Health Sciences.
Kaya, L., Gültekin, İ. G., Şahin, M., & Kırandı, Ö. (2020). Life quality levels of the parents of the children with autism spectrum disorder who take sport classes. Journal of Sports Education, 4(2), 190–202.
Kazak, A. E., & Marvin, R. S. (1984). Differences, difficulties, and adaptation: Stress and social networks in families with a handicapped child. Family Relations, 33(1), 19–25. https://doi.org/10.2307/583419
Korkmaz, B. (2000). Yağmur çocuklar: Otizm nedir?. Doğan Kitapçılık.
Korkmaz, Ö. (2004). Müzik öğretmenlerinin motivasyon kaynakları ve mesleki tükenmişlikleri Master’s thesis, Marmara University, Institute of Educational Sciences, Department of Fine Arts.
Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behavior problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50(3), 172–183.
Ludlow, A., Skelly, C., & Rohleder, P. (2011). Challenges faced by parents of children diagnosed with autism spectrum disorder. Journal of Health Psychology, 17(5), 702–711. https://doi.org/10.1177/1359105311422955
Mengi, A., & Çopuroğlu, Y. C. (2014). Toplumsal dışlanma ve otizm [Social exclusion and autism]. International Periodical for the Languages, Literature and History of Turkish or Turkic, 9(5), 607–626. https://doi.org/10.7827/TurkishStudies.6993
Mugno, D., Ruta, L., D’Arrigo, V. G., & Mazzone, L. (2007). Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder. Health and Quality of Life Outcomes, 5, 22. https://doi.org/10.1186/1477-7525-5-22
Murphy, N. A., & Carbone, P. S. (2008). Promoting the participation of children with disabilities in sport. Pediatrics, 121(5), 1057–1061.
Nealy, C. E., O’Hare, L., Powers, J. D., & Swick, D. C. (2012). The impact of autism spectrum disorders on the family: A qualitative study of mothers’ perspectives. Journal of Family Social Work, 15(3), 187–201. https://doi.org/10.1080/10522158.2012.675624
Özen, K. (2015). Özel öğrenme güçlüğü tanısı almış 7-9 yaş çocukların geliştirdikleri zihin kuramı yeteneklerinin sağlıklı gelişim gösteren grup ile karşılaştırılması. Hacettepe University Faculty of Health Sciences Journal.
Özgür, B. G., Aksu, H., & Eser, E. (2017). Otizmde yaşam kalitesi anketi anne-baba sürümünün Türkçe geçerliliği ve güvenirliği [Turkish validity and reliability of the quality of life questionnaire parent version in autism]. Anadolu Psikiyatri Dergisi, 18(4), 344.
Perrin, B. (1992). Community recreation for all: How to include persons with disabilities in regular leisure and recreation. Journal of Leisurability, 19(4), 28–36.
Sağcan, M. (1986). Rekreasyon ve turizm. Cumhuriyet Basımevi.
Savran, S. (2020). Özel gereksinimli çocukların rekreatif etkinliklere katılımları ile yaşam kaliteleri arasındaki ilişkinin ebeveyn rolü açısından incelenmesi: Manisa ili örneği. Master’s thesis, Celal Bayar University.
Sharma, O., Jain, N., & Meena, S. K. (2023). Impact of recreational and leisure activities on the quality of life of parents of children with autism spectrum disorders. Journal of Advances in Medicine and Medical Research, 35(13), 45–52. https://doi.org/10.9734/JAMMR/2023/v35i135044
Shu, B. C. (2009). Quality of life of family caregivers of children with autism: The mother’s perspective. Institute of Allied Health Sciences and Department of Nursing, National Cheng Kung University, 13(1), 81–91.
Şekeroğlu, O. Z. (2018). Otizm spektrum bozukluğu olan bireylere bakım veren kişilerin bakım yükü ile yaşam kalitesinin incelenmesi Master’s thesis, Çağ University, Institute of Social Sciences.
Tütüncü, Ö. (2008). Tütüncü, Ö. (2021). Rekreasyon ve rekreasyon yönetimi lisans programlarının kontenjanlarının değerlendirilmesi. Anatolia: Journal of Tourism Research, 19(12), 93–103. https://doi.org/10.17123/atad.1024336
Vara, Ş. (1999). Yoğun bakım hemşirelerinde iş doyumu ve genel yaşam doyumu arasındaki ilişkilerin incelenmesi.Unpublished master’s thesis, Ege University.
Woodgate, R. L., Ateah, C., & Secco, L. (2008). Living in a world of our own: The experience of parents who have a child with autism. Qualitative Health Research, 18(8), 1075–1083. https://doi.org/10.1177/1049732308320112
DOI: https://doi.org/10.53016/jerp.v6i1.286
Refbacks
- There are currently no refbacks.
The Journal of Education and Recreation Patterns © 2023 by The Journal of Education and Recreation Patterns is licensed under CC BY-NC-SA 4.0